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In part 1 of the Config Journey you will notice that 'we' (not 'you') is normally used when describing the issues experienced when living with ME. That's because MEMap is patient-led: the words certainly apply to us - we hope they mostly work for you. Often the Config Journey states the obvious: it seems clear that we and many recoverers struggle to avoid things that we know set us back and to adopt things we know work pretty well. Don't be afraid to build maps that are merely 'high quality reminders' rather than 'inspired perceptions'.
Full configuration of MEMap on this website involves taking a 2 part journey. Rather than the fiddly process of inputting information on your mobile device, you put this information and choices you make into a computer or device of your choice. It is saved locally on your computer until you are done. Clicking 'Configure' on the Config completion page then generates a pin. The main (top right) menu in the MEMap App offers a 'Configure App' option where you can use this pin to configure the App.
Since information is saved locally on your computer you must use the same computer and browser from start to end of the Config Journey. Also it is essential to successfully complete the 2 stage browser test below to ensure the browser you are using effectively saves the data you input. Finally, between starting the Config Journey and clicking Configure, it is crucial that you do not go into your computer's Settings and change the browser settings (eg privacy settings, clearing cached data), or use a 'private window'.
Part one of the Config Journey (which populates your app's 'Reframe Map') involves the 6 menu options at the top of this screen, from, left to right(or top to bottom on mobile), 'Practical' to 'Manage the day'. Each of these 6 sections has a number of categories of exactly the same format. There is a subject area, the chance to opt in, an illustrative 'Buddy' example, a relevant quote from an ME recoverer, and the opportunity to put your own 'Frame' around this subject area or issue - and begin to 'Reframe' it in your favour (more on this in 'About Frames and Reframes' below). If you keep clicking 'Save and Go Next' you will go through each of the 6 sections in turn. If you click the 6 menu options you can navigate the 6 sections in any order, missing any you don't fancy.
Part two of the config journey takes place on the Config completion page. It involves 9 simpler questions. These questions are designed to give you a racing start for building a Wellness Map. It is recommended that you complete all of them to get a good illustration of how this map can work for you - but you can opt out of anything that does not feel right. So long as you click Save before leaving every page, you can break and come back to the Config Journey at any point. Turning off your computer or closing your browser will not affect your data.
MEMap is designed to configure remotely. If there is someone you trust with your personal info who has a bit of energy and is a bit IT literate, allowing them to assimilate the config process and manage things for you is an option - wherever in the world they are. You may wish to read through the categories and tell them your thoughts, or simply have them talk you through it. This might be the foundation for them to support your path to recovery on an ongoing basis via MEMap.
Part one of the Config Journey (which populates your app's 'Reframe Map') asks you to create Frames and Reframes for future use. A 'Frame' is simply a way to clarify an issue, or a chunk or symptom of your illness. Putting a frame around something defines it, and gives it a separate identity of its own. There is no magic formula to do this. Although MEMap offers what might seem relevant categories, the best Frames are the ones that meaningfully describe a key part of what stands in the way of your health. Only your words, and often your own categories, will achieve this.
For simplicity MEMap takes a very liberal interpretation of the term reframe. By 'Reframe' we mean: find the strategy, solution or aspiration that best takes the issue or symptom the Frame describes forward - or demonstrates the outcome you would like. Sometimes a Reframe may be a plan or a reminder that you feel does not need a corresponding Frame. That's fine. But often a good solution or strategy can lose its meaning or potency without a reminder of how you feel whenever it is not utilised. Some of the categories in the Config Journey will seem to cover very obvious stuff. But the evidence is that PWME often KNOW what care they need to offer themselves but struggle to DO it in practice. For these categories, creating a Reframe as a reminder of good care planned, allows the corresponding Frame to be used later as a space to examine the factors that stop the plan coming to fruition. For more on Framing and Reframing, the App's Reframe Map offers the chance to view 'Framing strategies'.
Parts of the journey may arouse upsetting or angry responses. It may be best to pass over these sections. Alternatively, something that is upsetting may be very fertile ground containing an issue which needs addressing. In this case quickly ticking 'Opt me in' and moving on may offer a useful chance to come back to the issue at a better time. And generally, when you opt in during part one of the Config Journey, it is not necessary to write a Frame or Reframe. The empty Frame will exist in your App after configuration, with prompts about the subject area - and the same category heading as displayed in the Config Journey, so you can refer back to this website where needed.
Please do not open your browser in a private window when taking this Config Journey. Click Browser Test to check if your browser has the appropriate settings to configure MEMap (do not proceed without a positive response):
Second check: type a word into this box and click 'Save Test'. Then totally close your browser and navigate back to this page. If your word is visible your browser is set for configuration!
If your browser is in good shape click Begin Config to begin the Config Journey. Or choose to start with any of the sections in the menu above.
'Buddy only' config allows you to keep any data you have entered into the MEMap App (ie 'Your Bubbles' and 'Your Frames') but quickly add information to your App about categories in part one of the Config Journey. These will appear in the MEMap App as ME Buddy Frames. These Buddy Frames can be copied over into 'your own' Frames - where they will then be editable and have information about the subject area (category) they cover attached to them. To achieve Buddy only config, opt in to any of the categories you like in part one of the Config Journey but do not type anything. Just tick the boxes and Save before leaving each page. When you reach the Config Completion page don't bother about answering the questions on that page: simply tick the box marked 'Buddy Only', add your username and password and click 'Configure'. Then when you choose the menu option 'Configure App' in the MEMap App: after you have selected 'Web Journey Pin', tick 'Only configure ME Buddy'.
Where MEMap has already been configured or is in use, it may be useful to select new categories from part one of the Config Journey so new Frames can be added to the App without overwriting existing data. To achieve this, simply ensure the categories you want to add from the 6 pages comprising part one of the Config Journey have their boxes ticked and those categories you don't want to add are unticked (do this where it says 'Opt me in'). Then Save. Add any thoughts for the categories ticked, and save them. Finally return to this page, fill in your details below, click 'Send Frames' and note the pin. In your App choose the menu option 'Download Frames' from the Reframe Map screen, enter the pin with your username and password, and select and name location for these 'Sender' Frames when prompted. They can then be copied across to your own Frames by first navigating to that set of Sender Frames.
Before developing Frames to send from this device, it may suit you to clear Frame entries typed from any previous configuration or other use. Click 'Clear All!' to do this.
Recipient username IF you are not sending Frames to yourself: